OUR daughter Emmy was four months old when she was diagnosed in December 2014 with a bilateral stroke and ruptured brain aneurysm, which left her brain damaged, partially blind and struggling to breathe. Her condition meant that she struggled with almost every aspect of life. She was prone to chest infections, was oxygen-dependent and soon required round-the-clock care and support to make her life that little bit easier. We decided early on to care for Emmy at our home in Dunbartonshire. We didn’t want her to spend her short life in hospital. The quality of her life was at the forefront of our minds. Emmy was referred to CHAS in 2015 and for respite we went to Robin House, where the staff supported us all immensely from the outset. They help you to see that there is still joy to be had. Going there meant that we could enjoy family life without the everyday medical regimes and sleepless nights. But more than that they helped us to create memories that we will have forever. It’s hard to describe the significance of a place like this using words – it is the most special place we’ve ever known. Last month, Emmy… Read full this story
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